Now the year mark has long passed. Life continues as it always has. I still run around trying to get everyone where they need to be. Life is busy with the pre-transplant stuff again. The medical appointments seem quite far apart now. Sometimes there is nothing for a month or more! Scott has another biopsy tomorrow though. If this one is good and the next one too he should be able to discontinue the steroids finally. They are the current cause of irritating side effects that we hope clear up in the weeks after the steroids are stopped.
Scott is working 3 days a week. He has missed a few of those days due to catching some nasty coughs and colds recently. We also took some time to get away with extended family on a ski vacation last week. I had a fun time and the kids did too. Unfortunately Scott didn't feel well about half of the time with a bad cold so he didn't try skiing. He still had a good time though.
Many people ask me how Scott is doing. Considering how he was a year ago he is fantastic! I'm not sure if it will ever be a smooth ride though. Every little illness is always bigger for him. He still has long-term effects from the ordeal like some pain, osteoporosis, skin issues and muscle weakness. I have hope that they will improve but we have no guarantees. I had my hopes set high with the great physical feats a heart transplant would allow. Those hopes haven't been realised at this point. That doesn't mean we're not happy though. You don't have to be a marathon runner or body builder to be successful. Scott proved that long before his transplant. I guess I can say that things are "back to normal" now.
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Melanie, you and your family are amazing. Words can't express the emotions I have reading your blog and what you all have been going through. Melanie you are a rock,and I'm sure you wonder how you do it day by day, and your family could teach so much to people who think a bigger house or a nicer car or designer clothing is what is important in life. God bless you all.
ReplyDeleteMelanie,
ReplyDeleteI call what you describe as "My New Normal" ......
Life is changed completely by our transplants. Illnesses are harder to shake, we're not as strong as we once were. I too have had stomach, skin and plenty of other issues in addition to what seems to be a never ending stream of doctors. But, in my case and I believe in Scott's case as well .... we are living a GOOD life, compared to the alternatives.
I thank God every day, for each and every heart beat.
I wish you and your entire family well.
God Bless!!!
Press on , It does get better! I am three years out from my Heart Transplant. Just keep believing , do just one more step, one more thing, make your health your most important project! Share with the world all that you are! Stop thinking what hurts , what doesn't work , enjoy the rollercoaster of transplant , this is our new life , say things to your family you never said, tell your friends that you love them! Scott it does get better! Every year the blessings abound, when I get a cold or the meds do odd things, I thank God for the pain, the snot and being able to cough, Wow what a miracle I'm alive, you'll know when you're over it when you stop telling everyone you meet about Transplant, remember PAIN is enevitable , SUFFERING is not! God Bless you in your journey ! Life is about the journey , not the destination! Stephen
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