Home again, home again, jiggety jig!

It has been a great weekend! Scott has left the hospital four days in a row to come home or to my parent’s house. It has been such an uplifting experience for him to be out of the institutional setting. He isn’t any more tired than he is staying in the hospital. If anything I think he feels better being out. It was also great to go out socially on Saturday night and be with so many friends at a birthday party!
Every time I drive Scott back to the hospital I’m wondering to myself “Why is Scott in the hospital again”. I have to think about it to get an answer. He still needs a lot of help. But I can do so much of it now. Stairs are still an issue. However, he is going up and down 3 stairs pretty well with help now. If I was able to be near Scott 24/7 I think he could come home today. I don’t think it’s possible to do that yet. I still have 4 kids to get here and there and groceries etc. So we might have to wait a bit yet.
It’s weird for me because I haven’t spoken with a doctor in a week. I haven’t been at the hospital much. They have seen Scott a few times though. This whole dialysis thing is still a drawn-out affair. He is still getting hemodialysis through his neck. Early this week Scott had over 3L of fluid drained from his abdomen with a needle. That helped him feel quite a bit better. They want to see how fast his abdomen fills again. If it doesn’t fill quickly they will feel better about putting the peritoneal dialysis line in his abdomen. I guess the procedure is scheduled for Wednesday but the surgeon still needs to examine Scott before there is a final go-ahead. Who knows when they’ll show up! We’ve been hearing about this for 2 weeks. Scott’s abdomen was pretty big again today so I don’t know what they will decide.
The transplant cardiologists really want the dialysis line out of Scott’s neck so they can do the biopsies in the ‘echo lab’ rather than the ‘cath lab’. I guess the echo lab is much easier and Scott can recover much quicker. If Scott can have the peritoneal dialysis line inserted he can eventually have dialysis at home during the night instead of traveling to the hospital 3 times a week. So we’re hoping to get the green light for the abdominal dialysis line this week. If the kidneys would just get to work we wouldn’t have all of these dialysis issues! If only….I shouldn’t go there. We should just do the best we can with what we’ve got right!?