Friday, May 8, 2009

Frustrated

I feel like we’re getting the runaround and conflicting information. Yesterday Scott was told he’d have surgery at 10:00am. He was then told it would be delayed. What we weren’t told is that Scott was on an “on-call” list and he would have the surgery IF they could fit him in. So Scott wasn’t allowed to eat or drink or leave because he was on the list. At 11:30pm they called him for surgery and shortly after cancelled the call. He was still on the list this morning and still wasn’t allowed to eat or drink – he’d also missed his scheduled dialysis yesterday just in case he got called. At noon today after fasting for 36 hours Scott finally saw a different surgeon with a different opinion. This one says he has 2 hernias and he willl need 2 months to recover enough to be able to do the peritoneal dialysis. The other surgeon said he could do it right away. Who do we believe? The first surgeon is now ‘out of town’. Scott was taken off the list for the rest of the day so he could eat, do dialysis and come home for the evening. He will be back on the list tomorrow – no eating again. If they don’t fit him in tomorrow they might schedule him in sometime next week. We are so frustrated because Scott could have come home last Tuesday and come back for this surgery. Instead he has sat around the hospital in limbo for the last week and it still continues. I’m really tired of the hospital and Scott is more so. It has been almost 6 months since Scott last slept in his own bed. We’re ready for him to come home.

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