A Busy Day

The doctor told us recently that progress will be harder to see now. The big changes are(hopefully) behind us and the smaller changes will happen consistently over time. That is how I am looking at things now. Scott is still in the ICU. The change to a ward is getting closer though. Today Scott had the intial swallowing assessment. A speech pathologist came in and felt Scott's neck and throat while he swallowed a few things. Scott had a tablespoon of applesauce, some ice chips and 3 spoonfulls of water. He loved it!! The swallowing looks good so they will move on to another test on Friday. This test will have Scott swallowing things laced with Barium so they can be seen on an x-ray. They will take an x-ray video of Scott swallowing to make sure everthing goes down his esophagus to his stomach, not his trachea to his lungs. Getting fluid in your lungs is not what Scott needs so they continue to be extremely carefull. Scott is really excited! I had some kool-aid packets in the trunk from his hospital stay before the transplant. He asked me to bring them into the room so he could look at them and hold them. He is so excited to drink. They haven't even let him have ice chips since the weekend again.
Scott continues to get a bit stronger. They are still holding off on dialysis. It has been a week without it. He is starting to swell with excess fluid but the hope is that the kidneys will pick up. They're barely hanging on at the moment but tomorrow is another day, right!? Scott was also able to go down on oxygen a bit again. More baby steps. He also had an ultrasound of his swollen arm to make sure there wasn't another blood clot and the results were good, no clot! There was a few steps taken to the wheelchair, an outing and some great visitors. Overall a very positive day. I feel like we're finally over the hump!